“I was born with a genetic condition that affects my facial features. I have no cheekbones, and so my eyes dip down. I love my little ears, they don’t get cold at night. But I do need hearing aids. I’m one of the lucky ones."
This is what Jono Lancaster said while delivering a speech at NORD (National Organization for Rare Disorders) conference on October 21, 2015, in Washington D.C.
Jono suffers from Treacher Collins Syndrome. He is a public figure now, and has been living his life, defying all odds and breaking all the shackles! He, despite suffering from this major disorder, is not letting his enthusiasm to fade!
Jono, who is from West Yorkshire, UK, was born on October 31, 1985. He is the subject of the BBC documentary Love Me, Love My Face.
Read his full story below.
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